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Welcome to my website...
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This is a website all about me and my condition. I have a rare genetic disorder called CDKL5. This is a variation of Retts Syndrome (MECP2) a neurological disorder affecting over 10,000 girls born every year.
CDKL5 is an extremely rare variant of this with only 41 reported cases world
wide (June 2008) I am a very special little girl indeed. You can read all about me and my story below. |
Latest News...
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Donation to the Ward |
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We visited the Warrington children's ward last week. This time it wasn't for an admission But a mercy mission if you like? We heard that thieves had stolen all the Wii and PS2 games out of the ward! So mummy decided that with some of the left over fundraising money it would be a good idea to buy more. Not only is the playroom there for all the poorly boys and girls but their brothers and sister too. I know without the playroom my big sister Amy would of gone nuts the amount of hours she's spent in the hospital with me. Anyhow, I'm currently in alder hey hospital as I've had a very poorly tummy, hopefully I won't be in here for a long time?? Watch this space. |
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This website has been kindly donated by
MyDigitalMedia. Copyright Mia Loudon 2008. |
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